End of life care - people with learning disabilities and autism

Two people talking on chairs

Talking about death and dying can feel uncomfortable.

Woman and man in conversation

Talking can help people with learning disabilities, autistic people, their families and carers.

Man thinking with question mark

It will help to make decisions and make sure that what the person wants is respected.

Woman holding “My Plan” folder

Talking today can help people plan for their future with confidence.

Two people on laptop screen

The Victoria and Stuart toolkit was made with people with learning disabilities, families, learning disability support staff, and healthcare professionals.

A woman with yellow jacket holding a paper

It includes ways to support staff with end of life care planning with people with learning disabilities.

There are 3 guides:

Guide 1 end of life care planning
  • understanding end of life care planning
Guide 2 how to talk about dying
  • how to talk about dying
Guide 3 support resources
  • a toolkit for supporting people with a learning disability
Man with easy read sign

The guides have information in different formats including video and easy read.

Connect to support Surrey logo

You can find information about end of life care for people of all ages across Surrey through Connect to Support Surrey.

RIP image on flipchart

End of life care training is also provided by Phyllis Tuckwell Hospice Care which is funded by the NHS.


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